Policies for Membership in Diabetes Action Canada

Network Members

The Members will consist of those stakeholders approved by the CIHR (original SPOR Network proposal) and, subsequently, approved by the Steering Council who have signed a written, time-limited agreement. These stakeholders include the following:

  1. Inaugural 15 Network Principal Investigators and Scientific Co-Leads;
  2. Co-Investigators who are directly engaged in collaborative activities;
  3. Collaborating institutions (where the Principal Investigators and Co-Investigators conduct SPOR Network activities) including universities, academic hospital research centres and institutes, independent research centres and institutes eligible to receive CIHR funds;
  4. Students and Trainees who are engaged in SPOR Network academic activities supervised by Principal Investigators or Co-Investigators and successfully competed for a SPOR Network award through a peer-review process;
  5. Sponsor Partners that include NGOs, government or private sector entities that share the vision, mission and goals of and provide support to the SPOR Network.

The following policies define the terms and conditions that constitute the requirement for a co-investment of expertise, resource and service with respect to governance and operational management to deliver the outcomes articulated in our SPOR Network proposal and work plans. Membership requires a commitment to the principles of conflict of interest and adherence to declaration of real or perceived conflict when representatives of the Scientific Co-Leads, Principal Investigators, Co-Investigators, Students/Trainees or Sponsor Partners are engaged in any aspect of governance, operational management, research, education or communication related to SPOR Network activities.

The Steering Council of the SPOR Network reviews and approves the Membership Policies and the overall slate of members (as proposed by the Co-Leads advised by the SPOR Network Operations and Management) on an annual basis.  These policies will be made transparent to all SPOR Network members in terms of agreement documents and through direct communications.


Membership in Diabetes Action Canada of researchers, educators, students and trainees is essential for the fulfillment of the mission and vision of the SPOR Network. The following describes the general criteria for eligibility and the process for appointment of academic members. The Table details all the rights and privileges of membership.

Scientific Co-Leads

Diabetes Action Canada – the SPOR Network in Diabetes and its Related Complications has two Scientific Co-Leads – Gary Lewis and Jean-Pierre Després.  Gary Lewis is the Nominated Principal Applicant for the CIHR SPOR Network Grant. The Co-Leads report to the Steering Council and are responsible for all the activities of the SPOR Network including oversight of research, knowledge translation, training and mentoring, patient-engagement and the management of the administrative operations of the Network including support of the CIHR-approved governance function.

Principal Investigators

The CIHR SPOR Network application required the recruitment of 15 individuals with specific skills in the envisioned activities of the Network including human subjects applied research, patient-oriented research training, knowledge translation and patient-engagement, health policy, sex and gender, Indigenous Peoples’ health. These Principal Investigators signed the original SPOR Network application and have committed to the mission and vision of Diabetes Action Canada for its 5 year term and are represented on the Steering Council. Unless they resign their position at their Collaborating Institution, they are able to use the title Principal Investigator in Diabetes Action Canada for the 5 year term. They form the Operations/Management Committee of Diabetes Action Canada chaired by the Co-Leads. The Principal Investigators are entitled to use the Diabetes Action Canada Logo and Word Mark on their email and other signatures.

Co-Investigators

A larger team of investigators and educators are engaged in the activities of Diabetes Action Canada. These individuals may lead projects or provide significant collaboration. They are appointed to their position as Co-Investigator by either signing : 1) an inter-institutional or transfer agreement as the Institutional Investigator on a SPOR Network project; or, 2) a letter of agreement with Diabetes Action Canada. The appointment is time-limited to their engagement in the project as indicated in their signed agreement. Unless they resign their position at their Collaborating Institution, they are able to use the title Co-Investigator in Diabetes Action Canada for the term of their appointment. Co-Investigators are entitled to use the Diabetes Canada Logo and Word Mark on their email and other signatures.

Collaborating Institutions

A collaborating institution is a university or research institute (academic hospital-based or independent) that is able to hold CIHR funding. Collaborating institutions have signed an inter-institutional agreement with the University of Toronto for their engagement in projects for the SPOR Network in support of Principal Investigators and/or Co-Investigators.

Students/Trainees

Graduate students (Masters or PhD candidates) and Post-doctoral Fellows who are engaged in SPOR Network academic activities supervised by Scientific Co-Leads, Principal Investigators or Co-Investigators are eligible for membership in the SPOR Network. They must have competed successfully for a SPOR Network award through a peer-review process and approved by the Steering Council. They may maintain their membership for the duration of their award or until the end of the 5 years of the SPOR Network grant. They may use the title: “Recipient of a Diabetes Action Canada Studentship or Fellowship”.

Framework for Private and Public Sector Partnerships

The Vision of our SPOR Network is to enable the transformation of health outcomes for all Canadians with diabetes. We will accomplish this by aligning collaborative research performed upstream with what patients and their health professional care providers perceive as most urgent to prevent and effectively treat diabetes complications. We have identified goals that will uniquely position our investigators to network their activities across disciplines and provincial boundaries. The outcomes of these strategic basic, clinical research, knowledge translation, training and patient-engagement efforts will facilitate the scale-up of new and effective interventions to prevent and treat the complications of diabetes (retinopathy, nephropathy, neuropathy and cardiac disease) using precision diagnostic and therapeutic interventions. Transformative change of clinical care will rely on novel technologies to monitor and promote patient-empowered self-care. We must translate patient-centered knowledge into customized clinical care models that will include targeted therapies for diabetes complications.

To accomplish effective and timely translation of new knowledge into clinical practice it is essential that the SPOR Network partner strategically with stakeholders in both public and private sectors. The testing and scale up of new diagnostic and therapeutic interventions will require co-investment including from for-profit corporations, that share our vision and mission over the next 5 years.  Co-investment may range from direct funding of research projects, e.g., new diagnostic or drug discovery for one or more diabetes complications, to provision of infrastructure such as equipment or services, e.g., telecommunications for patient data acquisition. In addition the SPOR Network welcomes philanthropic support of researchers, students or specific research programs.

Depending on the negotiated arrangement, the co-investment by a private or public Strategic partner may be arranged directly with the SPOR Network through a Memorandum of Understanding agreement with the Co-Leads and Steering Council (Governance body for the SPOR Network) through:

  • either an industry contract with a SPOR Network partner academic or health care institution (University or university –affiliated research hospital) for a SPOR Network investigator; or,
  • by a standard donor agreement with a partner institution (University or Hospital Foundation).

Corporate Partners who co-invest will have the opportunity to become recognized members of the SPOR Network in accordance with policies and procedures set out by the governance (Steering Council) approved by CIHR.  This may include invitation for Corporate Partners to be represented on the Strategic Partnership and Innovations Committee of the Steering Council.  The interactions between the SPOR Network and its Members (Investigators, Government Agencies, NGOs) with the Corporate Private Sector Partners are anticipated to result in mutual gains and benefits that are desirable and natural outcomes of being involved in the SPOR Network. Such interactions will be conducted within the framework of the SPOR Network Conflict of Interest Policy and procedures (as required by CIHR).

Purpose of the Policy for SPOR Network Strategic Partner Relations

The purpose of this Policy is to reflect the framework for relationships between public and private strategic partners and Diabetes Action Canada – the SPOR Network in Diabetes and Its Related Complications.  This Policy focuses on protecting the integrity of the SPOR Network’s name, brand, and reputation, while enabling productive relationships that further the mission and goals of the SPOR Network.  For the purpose of this Policy, a corporation is broadly defined as:

  • limited companies (those that are incorporated), including publicly traded and non-public corporations;
  • sole proprietorships;
  • partnerships;
  • crown corporations;
  • non-governmental organizations or not-for-profit organizations; or,
  • foundations formed to carry out philanthropic activities on behalf of a national corporation.

Procedures for Entering into Relationships with Public and Private Strategic Partners

The SPOR Network will undertake a risk assessment of each potential relationship with a strategic partner to determine if the Network’s reputation could be adversely affected.  The SPOR Network will also assess the potential impact of the relationship in achieving the overall goals of the SPOR Network.  These assessments will be conducted by the SPOR Network Steering Council with advice from the Operations/Management Committee. Any relationship developed with a corporation may not contravene SPOR Network procedures, organizational rules or policies. Any real or perceived conflict of interest with potential public or private strategic partners must be declared by the members of the Steering Council and Operations/Management Committee in advance of the assessment process and on an ongoing basis according to the Policy on Conflict of Interest. The terms of agreement between the SPOR Network and Strategic Partners will include, among other things, procedures about “use of name” including logos and word marks of both parties.

Endorsement

The SPOR Network will not typically endorse a commercial product or service. An “endorsement” is an explicit statement of approval that gives direct support for a product or service, its claims and its properties. If endorsement is to be considered, the Steering Council must first evaluate the product or service with advice from the Operations /Management Committee.  Since the general public perceives close linkage among the terms “endorsed”, “recommended”, and “approved” the SPOR Network will consider these as synonymous.

Exclusivity

Whenever possible and feasible, the SPOR Network will seek funding for initiatives from a variety of strategic partners.  It is understood that occasions may arise where a sole strategic partner is appropriate.  However, the SPOR Network will not enter into relationships that involve agreements of total exclusivity that would restrict interested competing strategic partners from working with the SPOR Network on other initiatives.

Content Control

The SPOR Network will, as appropriate, maintain content control and/or approve the content of all information and health promotion resources resulting from strategic partner relationships including the use of the SPOR Network brand (logo and word mark) and trademarks.  The SPOR Network will use disclaimers as necessary on all such information and health promotion resources.

Role of Strategic Partners in the SPOR Network

Those NGOs that have been recognized by the CIHR SPOR Program as relevant representatives for patients (Diabetes Canada [formerly Canadian Diabetes Association] and the Juvenile Diabetes Research Foundation) may have representation on the highest level of governance for the SPOR Network (the Steering Council) with voting privileges. Since these NGOs have also contributed revenues (matching funds) to the SPOR Network for projects conducted by the SPOR Network, they are also Strategic Partners. Therefore, these NGOs are considered “Patient Representative Strategic Partners”.

Any other corporation with whom the SPOR Network has entered into a funding relationship are deemed “Strategic Partners” under the definition of SPOR Network Membership. From time to time, the SPOR Network may also nominate representatives from corporations to serve as non-voting members on the SPOR Network Steering Council committees, e.g., Strategic Planning and Innovations Committee.  These nominations will be based on the potential individual contribution of the nominee in achieving the goals of the SPOR Network.  These nominations may not necessarily be based on the level of contribution of the corporation to the SPOR Network.

Role of SPOR Network Representatives in Strategic Partner corporations

SPOR Network staff or members may at their own discretion act in an advisory capacity to strategic partners.  However, in acting in that capacity, they shall not represent the SPOR Network unless pre-approved by the SPOR Network Steering Council.  The individual shall provide an oral or written disclaimer (as appropriate) to the corporation stating that the views expressed are his/her own, and not those of the SPOR Network.

Academic (Researchers)

Who is eligible?

Individuals appointed to a university, academic hospital or research institute who are engaged in diabetes-related research (basic, clinical, knowledge translation) and interested in contributing to the mission and vision of Diabetes Action Canada, but who are not directly collaborating in a project funded through institutional agreements with Diabetes Action Canada, are potentially eligible. For individuals outside of Canada, academic appointment must be at an internationally recognized research-intensive university and/or academic hospital or research institute. Research Associates who are key members of an existing project with one of our Principal Investigators, but do not hold an appointment at a university, academic hospital or research institute, may be considered on a case-by-case basis by the Steering Council.

 How is membership acquired?

Through inquiry to Diabetes Action Canada or to one of our Principal Investigators, a researcher may be recommended for membership. An application is submitted to Diabetes Action Canada that provides background information on the academic status of the individual as well as an updated CV. Applications are reviewed by the Operational Management Committee who recommends membership to the Co-Scientific Leads. The final decision for membership is by approval of the Steering Council.

 Duration of membership?

Membership is for two years with the opportunity for renewal with a letter of attestation about continued interest and an updated CV.

 What is value of Associate Membership?

  • Listing on the Diabetes Action Canada Website and networking with researchers, patients and students with common interest in preventing diabetes complications
  • Review of grant proposals and potential endorsement for research that contributes to the mission and vision of Diabetes Action Canada
  • Opportunity to collaborate on Diabetes Action Canada projects
  • Receives Newsletters and News-blasts from the Scientific Co-Leads

 Students and Postdoctoral Trainees (Research)

Who is eligible?

Graduate or health professional students or postdoctoral trainees engaged in research training at a university, academic hospital or research institute who are engaged in diabetes-related research (basic, clinical, knowledge translation) and interested in contributing to the mission and vision of Diabetes Action Canada. For students or postdoctoral trainees outside of Canada, research must be conducted at an internationally recognized research-intensive university and/or academic hospital or research institute.

How is membership acquired?

Through inquiry to Diabetes Action Canada or to one of our Principal Investigators, Co-Investigators, or Associate Members a student or postdoctoral fellow may be recommended for membership. An application is submitted to Diabetes Action Canada that provides background information on the academic status of the individual as well as an updated CV. Applications are reviewed by the Training and Mentoring Goal Group Leads who recommend membership to the Co-Scientific Leads. The final decision for membership is by approval of the Operations-Management Committee.

Duration of membership?

Membership is for two years with the opportunity for renewal with a letter of attestation about continued interest and an updated CV.

What is value of Associate Membership?

  • Listing on the Diabetes Action Canada Website and networking with researchers, patients and students with common interest in preventing diabetes complications
  • Opportunity to collaborate on Diabetes Action Canada projects
  • Receives Newsletters and News-blasts from the Scientific Co-Leads

Patient Representative (Research)

Who is eligible?

Patients who are directly engaged in the activities of Diabetes Action Canada as advisors and/or collaborators are eligible to apply for Associate Membership.

How is membership acquired?

The application process requires a letter of recommendation from the relevant Goal Group lead.  A biosketch or resume may be provided instead of a CV.

Applications are reviewed and approved by the Operations-Management Committee.

Duration of membership?

Membership is for two years with the opportunity for renewal with a letter of attestation about continued interest and an updated CV.

What is value of Associate Membership?

  • Listing on the Diabetes Action Canada Website and networking with researchers and patients with common interest in the treatment and prevention of diabetes complications
  • Opportunity to collaborate on Diabetes Action Canada projects
  • Receives Newsletters and News-blasts from the Scientific Co-Leads from Diabetes Action Canada

 

 

Associate Member –

Academic (Researchers)

Associate Member –

Students and Postdoctoral Trainees (Research)

 

Associate Member –

Patient Representative (Research)

Eligibility Individuals appointed to a university, academic hospital or research institute who are engaged in diabetes-related research Graduate or health professional student, or Postdoctoral trainee Patients who are directly engaged in the activities of Diabetes Action Canada as advisors and/or collaborators
Interested in contributing to the mission and vision of Diabetes Action Canada, but who are not directly collaborating in a project funded through institutional agreements with Diabetes Action Canada Engaged in research training at a university, academic hospital, or research institution engaged in diabetes-related research
Research Associates who are key members of an existing project with one of our Principal Investigators, but do not hold an appointment at a university, academic hospital or research institute, may be considered on a case-by-case basis
Application process PI recommends researcher for membership PI, Co-I, or Associate Member recommends Student / Postdoctoral Fellow for membership Relevant Goal Group lead writes letter of recommendation
Researcher submits application and CV Student / Postdoctoral Fellow submits application and updated CV Patient submits biosketch or resume
Operations-Management Committee review application Training & Mentoring Goal Group Leads review applications Operations-Management Committee review application
Operations-Management Committee recommends membership to Co-Scientific Leads Training & Mentoring Goal Group Leads recommend membership to Co-Scientific Leads
Membership is submitted to Steering Council for approval Operations-Management Committee review application

 

Membership duration Two years Two years Two years
Value of membership Listing on the Diabetes Action Canada Website and networking with researchers, patients and students with common interest in preventing diabetes complications

 

Listing on the Diabetes Action Canada Website and networking with researchers, patients and students with common interest in preventing diabetes complications

 

Listing on the Diabetes Action Canada Website and networking with researchers, patients and students with common interest in preventing diabetes complications

 

Review of grant proposals and potential endorsement for research that contributes to the mission and vision of Diabetes Action Canada
Opportunity to collaborate on Diabetes Action Canada projects

 

Opportunity to collaborate on Diabetes Action Canada projects

 

Opportunity to collaborate on Diabetes Action Canada projects

 

Receives Newsletters and News-blasts from the Scientific Co-Leads Receives Newsletters and News-blasts from the Scientific Co-Leads Receives Newsletters and News-blasts from the Scientific Co-Leads


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