For years, research in Canada has been done with little or no consultation with those living with the condition being investigated. At Diabetes Action Canada, all projects must involve the patient perspective and practice patient-oriented research. This means those who live with diabetes need to be engaged to ensure research planning is relevant to the community and produces meaningful results for improving the health outcomes of those living with diabetes.
The Connect1d Canada Community Advisory Committee (CCAC) will support decisions related to how the Connect1d Canada project is managed, how participants and staff are protected, and how accountability is assured. As Connect1d Canada grows, the CCAC will ensure the project meets the needs of the T1D community. This includes helping to develop a strategic roadmap, supporting patient engagement activities, and advising on areas such as research study recruitment and sustainability planning.
Full plan is here: