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Become a Patient Partner

Become a Patient Partner

What does it mean to be engage and contribute as a patient partner?

Diabetes Action Canada aims to integrate the patient perspective into every step of the research process including developing research questions, defining research objectives, collecting data and evaluating results; however, while some patients have the readiness to contribute as full members of research teams, others may bring a range of expertise such as in ethics or as knowledge brokers. Overall the patients’ roles will vary according to the contributions a patient is prepared to offer.

Patient-oriented research is aimed at achieving benefits that matter to patients:

  • Improved health
  • Improved access to the health care system
  • The right treatment at the right time
  • Being an active and informed partner in health care
  • Better quality of life
  • Make a contribution to improving the cost-effectiveness of the health care system

Patient Engagement is the Heart of What We Do

Patient engagement and patient-oriented research go hand in hand.  At Diabetes Action Canada, we believe that partnering with the people whose lives are touched by diabetes is critical to achieving our goals of finding real solutions to improve the lives of people and families who are living with this condition. Our Patient Engagement and Knowledge Translation Program co-leads Drs. Joyce Dogba, France Legaré (all from the University of Laval) published a recent paper in Health Expectationsdetailing the process of determining the topics most important to people living with or caring for someone living with diabetes.  The findings of this paper have led to the organizational structure of our research Network and continue to inform our community of investigators and stakeholders.

Diabetes Action Canada strives to include a wide range of people living with diabetes (young and old, those with both Type 1 Diabetes (T1D) and Type 2 Diabetes (T2D), men and women) from diverse ethnicities and backgrounds as Patient Partners at all levels of our network. There is a growing understanding that some populations, such as Indigenous Peoples, new immigrants and seniors are not as often involved in research. To this end, we are working continuously to ensure that people involved as Patient Partners in Diabetes Action Canada are reflective of all Canadians whose lives are touched by diabetes.

“Patient engagement and patient-oriented research go hand in hand.”

Within Diabetes Action Canada, the Patient Engagement Program has established three Patient Circles: the Collective Patient Circle (16 Patient Partners); the Francophone Patient Circle (10 Patient Partners, to be renamed the Francophone and Immigrant Patient Circle); and, the Indigenous Patients Advisory Circle (10 Patient Partners).  Each Patient Circle includes a variety of persons living with diabetes from across Canada with a shared mission to foster patient-oriented research relevant to diabetes and to contribute to better quality research on diabetes and its related complications.  Patient Circles meet throughout the year to discuss projects and lend their expertise to researchers and administrators, as people who know what it is like to live with diabetes. Additionally, Patient Partners have the opportunity to become research team members. By sharing their lived experiences with the condition, they help ensure the science, publications, new projects and communication of our research findings are more relevant and more accessible to persons living with diabetes.  In total, Diabetes Action Canada currently has 80 Patient Partners enrolled and participating at one level or another. Of these, 25 are currently actively collaborating on research projects.

An important goal of Canada’s Strategy for Patient-Oriented Research (SPOR) is to give people living with diabetes more of a voice in designing and implementing research projects. The ultimate objective is to maximize the benefits of research for people living with diabetes.

Persons that meet one or more of the eligibility criteria can become Patient Partners of the Network:

  • You are living with diabetes of any type (type 1, type 2, pre-diabetes, etc.)

  • You care for someone living with diabetes of any type

We aim to have Patient Partners from a variety of backgrounds so that research in our network can serve all people with diabetes. We are often looking specifically for people in one or more of these groups:

  • You moved to Canada and you care about the realities of living with diabetes as an immigrant
  • You are Indigenous and are living with diabetes of any type
  • You are living in a remote community with diabetes of any type

There are two ways to be actively involved

1. Join a Patient Circle!

You will participate in discussions approximately once a month pertaining to research projects and strategic goals of the Network.

2. Get involved in a research team!

Researchers need your feedback to make sure research projects are relevant for people living with diabetes.

Diabetes Action Canada | SPOR Network
200 Elizabeth Street
Eaton Building, Room 12E242
Toronto, Ontario M5G 2C4 Canada

416-340-4800 ex. 2522
info@diabetesaction.ca