Oversight of the use of our data is through a robust Research Governing Committee (RGC), where 50% of the committee is made up of Patient Partners.

Please Click here to review our RGC Frame work including our Terms of Reference.

To remain transparent in our decision-making process, our Standard Operating Procedures (SOPs) are publicly available.  Please select one to read about how we create researcher accounts, what our fee structure looks like and how we close and archive projects.