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Author: Linxi Mytkolli

Prix d’application des connaissances 2019-2020 d’Action diabète Canada pour étudiants des cycles supérieurs et postdoctoraux

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En mai, le programme d’application des connaissances d’Action diabète Canada a lancé son deuxième concours de bourses pour étudiants des cycles supérieurs et postdoctoraux. Au total, cinq soumissions ont été reçues. Elles ont été évaluées par les chercheurs et les patients partenaires.Cette année, le programme d’application des connaissances a remis deux bourses d’un an d’une valeur de 19 000 $ à des étudiants des cycles supérieurs et une bourse d’un an d’une valeur de 40 000 $ à un étudiant postdoctoral. Nous sommes heureux d’annoncer le nom des lauréats de l’édition 2019-2020 du concours annuel de bourses d’application des connaissances pour étudiants des cycles supérieurs et postdoctoraux.

  • Choumous Mannoubi (bourse de doctorat) – Conception d’une plateforme de télénutrition pour la gestion thérapeutique des patients souffrant de maladies chroniques – Université de Montréal, Superviseure : Brigitte Vachon; co-superviseure : Dahlia Kairy
  • Jaime Boisvenue (bourse de doctorat) – Comprendre l’expérience du vécu avec le diabète de type 1 et ses motivations pour la recherche d’éducation sur le diabète : une initiative de Canadian Dose Adjustment for Normal Eating (CanDAFNE) – Université de l’Alberta, Superviseure : Rose Yeung
  • Lydi-Anne Vézina-Im (bourse postdoctorale) – Hygiène du sommeil et habitudes de sommeil chez les adultes souffrant de diabète de type 2 : favoriser la compréhension pour prévenir les complications liées au diabète – Université Laval, Superviseure : Sophie Desroches; co-superviseur : Charles M. Morin

Félicitations à tous les récipiendaires et bonne chance dans vos projets de recherche!

Groupe d’application des connaissances d’Action diabète Canada

Diabetes Action Canada Knowledge Translation Graduate and Postdoctoral Fellowship Awards 2019-2020

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In May, the Diabetes Action Canada Knowledge Translation Research Program launched its second Knowledge Translation Graduate and Postdoctoral Fellowship Competition. A total of five applications were received and evaluated by researchers and Patient Partners.

This year, the Knowledge Translation Program granted two doctoral fellowships, of 19,000/year for one year, and one postdoctoral fellowship award, of $40,000/year for one year. We are pleased to announce the successful recipients of the fellowship awards for this year’s KT Graduate and Postdoctoral Fellowship Awards Competition 2019-2020.

  • Choumous Mannoubi (doctoral fellowship) – Design of a tele-nutrition platform for the therapeutic management of patients with chronic diseases – Université de Montréal, Supervisor: Brigitte Vachon; Co-Supervisor: Dahlia Kairy
  • Jaime Boisvenue (doctoral fellowship) – Understanding the type 1 diabetes lived experience and its motivations in seeking diabetes education: A Canadian Dose Adjustment for Normal Eating (CanDAFNE) Initiative – University of Alberta, Supervisor: Rose Yeung
  • Lydi-Anne Vézina-Im (postdoctoral fellowship)Sleep hygiene behaviors and sleep patterns in adults with type 2 diabetes: Understanding to help prevent diabetes complications – Université Laval, Supervisor: Sophie Desroches; Co-Supervisor: Charles M. Morin

Congratulations to all the DAC Knowledge Translation Awardees and good luck with your research projects!

Diabetes Action Canada Knowledge Translation Group

Diabetes Action Canada highlights Patient-Oriented Research at the 2019 Diabetes Canada Professional Conference

Diabetes Canada held its annual Professional Conference in Winnipeg Manitoba on October 2nd – Oct 5th, 2019.  Diabetes Action Canada once again kicked off the event by hosting a pre-conference trainee day.  This was the most successful Trainee Day yet with 29 attendees.  We as an opportunity to connect with one of our Diabetes Action Canada trainees, Dr. Ruth Ndjaboue Njike, who attended the event and is a 2019-2021 postdoctoral fellowship awardee. Ruth was kind enough to share her perspectives on her experience below.

I had the opportunity to attend the Diabetes Action Canada Trainee Day first in 2018.  Then it was such a great experience for many reasons, but the recent 2019 Trainee Day was even better. It all started with the interactive layout of the room.  Everyone was seated in small groups around a round table, leading to a more casual environment.  Spending almost the whole day with the same people was itself an ice-breaking activity!  People seated with me were from different academic background (basic science, health profession science, medicine and social science) and as the day progressed, we learnt about each other.

Click to read Ruth’s full story


On Thursday October 4th, 2019 Diabetes Action Canada was honoured to host a symposium on the Role of Patient-Oriented Research in the Development of New Models of Care.  This symposium featured threes talks from our research Network highlighting successful patient engagement in research planning, design and implementation.  These talks included:

  1. “Transforming Type 1 Diabetes Care – a digital platform to accelerate research and build community”, presented by Kate Farnsworth, Dr. Shivani Goyal and Dr. Peter Senior from the Innovations in Type 1 Diabetes Program. This talk highlighted the patient co-design process in building a digital platform to connect those living with type 1 diabetes with clinical research opportunities
  2. “Engaging Patient Partners in Co-Design of a Community-Based Self-Management Intervention for Older Adults with Diabetes and Multiple Chronic Conditions” presented by Frank Tang, Dr. Maureen Markle-Reid and Dr. Jenny Ploeg from the Aging, Community and Population Health Program. This talk discussed the role of Patient Partners in their community-based intervention to promote health aging at home for individuals with diabetes and multiple co-morbidities.
  3. “Indigenous Partners Empowering Wholistic Approaches to Wellness” presented by members of the Indigenous Patient Circle, Dr. Alex McComber, Sasha Delorme, Kenya Beardy, Barb Nepinak, and Philina Sky. This talk featured the narratives of the members of the Indigenous Patient Circles and the personal and community struggles experienced when living with diabetes.

This event was very well attended and provided an opportunity for Diabetes Action Canada to promote patient-oriented research and its application in research to improve models of care at both the community and personal level.

L’opinion des patients transforme la recherche dans les bases de données

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Par Krista Lamb

Comment savoir le nombre de personnes vivant avec le diabète dans une province? Ce chiffre augmente-t-il ou diminue-t-il? Les personnes vivant avec le diabète de type 2 courent-elles plus ou moins de risques de faire un infarctus après 50 ans? Les personnes ayant le diabète de type 1 et qui se servent d’une pompe à insuline ont-elles moins de complications associées au diabète que les personnes qui ne se servent pas de pompe?

Les chercheurs sont en mesure de répondre à toutes ces questions s’ils ont accès à des données sur les personnes vivant avec le diabète. Voilà l’une des principales raisons pour lesquelles Action diabète Canada a mis sur pied le Répertoire national du diabète. Le Répertoire est un outil dont peuvent se servir les chercheurs pour analyser l’information sur les personnes vivant avec le diabète partout au Canada afin d’améliorer les résultats en matière de santé et de prévenir les complications. L’utilisation des données est supervisée par des patients partenaires dévoués qui collaborent avec des chercheurs, des fournisseurs de soins et des experts de la vie privée et du droit. Il n’est toujours pas fréquent qu’un organisme de recherche intègre des patients à la gouvernance d’un tel projet et, comme le souligne un article récent du numéro d’avril 2019 du British Medical Journal, cette approche collaborative a été un franc succès.

Cliquez ici pour lire l’histoire en entier

How the Patient voice is Transforming Database Research

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How do we know the number of people living with diabetes in a province? Is that number going up or down? Are people living with type 2 diabetes more or less likely to have a heart attack after they turn 50? Does a person with type 1 diabetes using an insulin pump have fewer diabetes related complications compared to those without an insulin pump?

These are all questions researchers are able to answer when they have access to data about people living with diabetes. It’s one of the core reasons Diabetes Action Canada has developed the National Diabetes Repository (NDR). The NDR is a tool researchers can use to better analyze information about people living with diabetes across Canada in order to support improved health outcomes and prevent complications. Oversight of the use of the data is through dedicated Patient Partners working alongside researchers, healthcare providers and experts in privacy and law. It is still uncommon for a research organization to incorporate patients into the governance of a project like this and, as highlighted in a recent article in the April 2019 edition of the British Medical Journal, this collaborative approach has been extremely successful.

Click Here to read full story

Opening Letter from Gary and Jean-Pierre

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Each year we see amazing strides in patient engagement within our research activities.   This year, some of these successes in patient engagement were highlighted at the 2019 Diabetes Canada Professional Conference during a 90 minute symposium. Dr. Ruth Ndjaboue, one of trainees, presents her perspectives on patient engagement and the pre-conference trainee day in this newsletter.

Over the past year, Diabetes Action Canada has engaged in performance assessment to better understand the impact of our activities in fulfilling our mission of improving health outcomes for persons living with diabetes. An in-depth Network Evaluation prepared by the research teams of Drs. Val Rac and Mathieu Ouimet has revealed the importance of our growing inter-disciplinary collaborations that evolve around the experiential knowledge and perspectives of our Patient Partners. Internal communication among our members has emerged as an area for improvement. We have not engaged a Communications Consultant, Krista Lamb, who is assisting us in improving the readability and accessibility of the information generated by our Network including through social media.  The Network Evaluation Report has been shared internally with our Operations and Management Committee as well as externally with CIHR and the external review committee. The content will be shared more broadly, once the peer-reviewed publications are in press in the near future.

The External Scientific Review of Diabetes Action Canada, which concluded at the end of November, was recommended by our leadership and Steering Council (although not required  by CIHR).  The panel of four external reviewers with expertise spanning all aspects of our SPOR Network activities, conducted interviews with Patient Partners, Researchers, Steering Council and Staff members to gather information and insight about our research and organizational structure.   Although a detail report is still pending we heard preliminary positive and constructive feedback from the panel and we look forward to acting on their recommendations. We want to thank all of those members of our Network who took the time to attend the external review in person, particularly those who travelled from across the country.

We hope you enjoy the stories in this newsletter as we strive to make the content more interesting to read.  We feature interviews with both Dr. Charles de Mestral on his recent media appearance and publication on diabetes-related lower limb amputations in Ontario and with our National Diabetes Repository team and how the repository is being used in research projects.  Finally, we share the recent press release for Research Canada, highlighting our patient-oriented research for diabetes awareness month. Finally, we wish to congratulate the recipients of our Knowledge Translation scholarship awards who are listed in this publication.

Wishing you all a happy a restful holiday season.

 

The Indigenous Youth Mentorship Program (IYMP) has released the report from its National Gathering!

On March 20th & 21st, the Indigenous Youth Mentorship Program (IYMP) team members from across Canada came together in Calgary, Alberta for the 3rd Annual National Team Gathering. The primary goal of the gathering was to review progress over the past 2 years, share new data/information gathered within each door and set a preliminary direction for the next 5 years as a Pathways Component 3 Research Team.  The event held a series of the team building exercises, learning opportunities, story telling, and indigenous ceremonies as the team plans for the future of IYMP.

To learn more about this event you can download the full report here

Taking steps in the right direction to prevent diabetes-related amputation

 

That Dr. Charles de Mestral spent the morning before our interview at Queen’s Park advocating for improved wound care for people with diabetes in Ontario should not be surprising. The researcher and vascular surgeon at St. Michael’s Hospital has become a passionate voice for the need to stem the tide of amputations related to diabetes.

de Mestral, who is a Diabetes Action Canada researcher, recently co-led a study, published in the Canadian Medical Association Journal (CMAJ), that showed a rise in the number of diabetes-related lower limb amputations in Ontario. While this does correspond to the increasing number of type 2 diabetes diagnoses in the province, the results were still alarming.

“It’s discouraging,” says de Mestral, “because so many of those amputations could have been prevented. We know that [type 2] diabetes is increasing and that’s likely what’s driving this.” Part of the solution, he believes is to prevent diabetes and better control blood sugar in those living with the disease, but he also sees a need for improvements in foot care.

Unlike in other complications of diabetes, like eye disease or kidney damage, there is not always coordinated care of foot complications. Patients may not be able to access a chiropodist or podiatrist without paying additional fees and their family doctor may be too busy to provide the detailed regular foot care checks that Canadian and international guidelines recommended for patients with diabetes. This means that a patient may not get the care they need until far too late, when a wound that could easily have been treated requires a much more invasive approach.

For de Mestral, a vascular surgeon, a large part of his job is dealing with poor circulation in a patient’s legs. He estimates that he and his colleagues at St. Michael’s Hospital alone see a dozen patients a week with a limb-threatening problem, most often related to diabetes. “We know that in Canada over 80% of amputations are related to diabetes, often in conjunction with poor circulation, known as peripheral artery disease. And what I see too often is that patients are struggling to get the right care at the right time in order to prevent amputation. He is hopeful that by raising awareness among patients and scaling up the success of multi-disciplinary foot care teams involving doctors, podiatrists, chiropodists and nurses, diabetic foot ulcers can be diagnosed and treated earlier in order to ensure they heal properly, rather than result in amputation.

There is also a need to better understand the issues behind rising numbers of amputations and to develop an evidence-basis for prevention efforts across Canada. This is why the Government of Ontario recently awarded de Mestral an Early Researcher Award to support his work. “That award is allowing me to hire graduate students and other research team members to really focus on the problem of amputation in patients with diabetes and peripheral artery disease,” he says. “We’re first looking at better characterizing the burden of disease, with studies like the one that came out in CMAJ looking at rates of amputation over time in addition to identifying regions and patient groups with high rates of limb loss across the province.” de Mestral’s team will also be analyzing  the economic impact of amputation and  existing prevention efforts across the province in order to better understand where improvements can be made.

While he hopes to have an impact on patient lives through his research, de Mestral also knows that practical advice can be helpful for those living with diabetes who might be concerned about amputation risk. “The single most important message to anyone with diabetes is check your feet every day,” he says. “Or have a family member or caregiver help with this.” He suggests looking for wounds, redness, areas that might be tender or painful and discoloration of the toes – if you detect any of those things, go to your family doctor right away. “We know that people with diabetes have a 30% lifetime chance of getting a wound on their foot. Thankfully, and if a wound is recognized early, the chance of healing it is over 80%.”

Diabetes Canada offers a helpful checklist for those with diabetes to help support better foot care. You can access it on their website.

For more information about the work Diabetes Action Canada is doing in this area, visit the section of our website on Foot Care and Prevention of Amputation.

Story by Krista Lamb

 

Prendre les bonnes mesures pour prévenir les amputations liées au diabète

 

Que le Dr Charles de Mestral ait passé la matinée précédant notre entrevue à Queen’s Park, à promouvoir des soins améliorés des plaies pour les personnes vivant avec le diabète en Ontario ne devrait pas être surprenant. En effet, le chercheur et chirurgien vasculaire à l’Hôpital St. Michael s’est fait le porte-parole passionné de la nécessité d’endiguer la vague d’amputations liées au diabète.

Chercheur à Action diabète Canada, le Dr de Mestral a récemment codirigé une étude, publiée dans le Canadian Medical Association Journal (CMAJ), qui révèle une hausse du nombre d’amputations de membres inférieurs liées au diabète en Ontario. Même si ce résultat s’inscrit dans le contexte de la hausse du nombre de diagnostics de diabète de type 2 dans cette province, les résultats n’en demeurent pas moins alarmants.

« C’est décourageant, dit le Dr de Mestral, parce que beaucoup de ces amputations auraient pu être évitées. Nous savons que le diabète [de type 2] est en progression et qu’il est la cause probable de ce phénomène. » À son avis, la solution passe par la prévention du diabète et par un meilleur contrôle du taux de glycémie chez les personnes diabétiques, mais aussi par l’amélioration des soins des pieds. Contrairement aux autres complications du diabète, comme les maladies oculaires ou les dommages aux reins, les soins prodigués en cas de complications touchant les pieds ne sont pas toujours coordonnés. Il est possible que les patients doivent payer pour consulter un podologue ou un podiatre et que leur médecin de famille soit trop occupé pour examiner régulièrement leurs pieds, comme le recommandent les directives canadiennes et internationales pour les patients diabétiques. Ainsi, le patient reçoit les soins nécessaires seulement lorsqu’il est beaucoup trop tard, au moment où une plaie qui aurait pu être traitée facilement nécessite une approche beaucoup plus invasive.

Le Dr de Mestral, qui est chirurgien vasculaire, traite principalement la mauvaise circulation sanguine dans les jambes de ses patients. Il estime que, à eux seuls, lui et ses collègues de l’Hôpital St. Michael voient chaque semaine une douzaine de patients aux prises avec un problème mettant en danger un membre. La plupart du temps, ce problème est lié au diabète. « Nous savons qu’au Canada plus de 80 % des amputations sont associés au diabète, qui va souvent de pair avec une mauvaise circulation. Cette affection s’appelle la maladie vasculaire périphérique. Je vois trop souvent des patients qui luttent pour obtenir des soins adéquats à temps pour prévenir l’amputation. » Il a bon espoir que la sensibilisation des patients et l’intensification du succès des équipes de soins des pieds multidisciplinaires, formées de médecins, de podiatres, de podologues et d’infirmières, mèneront au diagnostic et au traitement précoces des ulcères du pied chez les personnes diabétiques afin qu’elles puissent guérir correctement au lieu de se faire amputer.

Il faut aussi une meilleure compréhension des problèmes associés à la hausse du nombre d’amputations et la collecte de données probantes justifiant des efforts de prévention partout au Canada. C’est pourquoi le gouvernement de l’Ontario a récemment octroyé au Dr de Mestral une Bourse de nouveau chercheur pour soutenir ses travaux. « Cette bourse me permet d’engager des étudiants de cycle supérieur et d’autres chercheurs pour étudier le problème de l’amputation chez les patients atteints de diabète et de maladie vasculaire périphérique, dit-il. Nous cherchons tout d’abord à mieux caractériser le fardeau de la maladie, grâce à des études comme celle publiée par le CMAJ qui se penche sur le taux d’amputation dans le temps en plus de cerner les régions et les groupes de patients présentant les taux les plus élevés de perte de membres de la province. » L’équipe du docteur analysera aussi les conséquences économiques de l’amputation et les efforts de prévention qui sont faits en Ontario à l’heure actuelle dans le but de mieux comprendre où des améliorations peuvent être apportées.

Bien qu’il espère que ses recherches amélioreront la vie des patients, le Dr de Mestral sait que les conseils pratiques peuvent également être utiles pour les personnes vivant avec le diabète qui craignent l’amputation. « Mon message le plus important pour toute personne vivant avec le diabète est : examinez vos pieds tous les jours ou demandez à un proche ou à un aidant de le faire pour vous. Recherchez des plaies, des rougeurs, des zones sensibles ou douloureuses et la décoloration des orteils. Si vous détectez l’un de ces signes, consultez immédiatement votre médecin de famille. Les personnes atteintes de diabète ont 30 % de chances de développer une plaie au pied au cours de leur vie. Heureusement, si la plaie est détectée tôt, les chances de guérison sont de plus de 80 %. »

Diabète Canada offre aux personnes diabétiques une liste pratique pour de meilleurs soins des pieds. Vous pouvez y accéder sur le site Web de l’organisme.

Pour de plus amples renseignements sur les travaux menés par Action diabète Canada dans ce domaine, visitez la section de son site Web consacrée aux soins des pieds et à la prévention de l’amputation d’un membre inférieur.

 

An economic analysis of the tele-retina screening program

Tele-retina Screening test being done on patient

 

The latest issue of the Canadian Journal of Ophthalmology features a paper from Diabetes Action Canada researcher Dr. Valeria Rac looking at the economic analysis of the tele-retina screening program for diabetic retinopathy.

Dr. Rac and her team concluded that this program is a more cost-effective means of screening for diabetic retinopathy than the current standard form of care for urban and rural individuals with diabetes who are at risk of being under-screened.

You can read the full paper on the Canadian Journal of Ophthalmology website.

Learn more about Diabetes Action Canada’s Tele-Retina Screening Program here.