Diabetes Action Canada partners with Canadian startup, Bitnobi, Inc., to enable secure and trusted, data sharing

Jaferi, H; Pow, C.  

Diabetes Action Canada partnered with Bitnobi Inc. to develop a secure and trusted data-sharing platform aimed at enhancing diabetes research by protecting patient privacy. This collaboration enables researchers to access and share valuable health data for improved outcomes. Diabetes Action Canada’s involvement is crucial in advancing diabetes research through innovative technology and ensuring patient confidentiality in the data-sharing process.

Participatory governance over research in an academic research network: the case of Diabetes Action Canada.

Willison DJ, Trowbridge J, Greiver M, Keshavjee K, Mumford D, Sullivan F.BMJ Open. 2019 Apr 20;9(4):e026828. doi: 10.1136/bmjopen-2018-026828.PMID: 31005936

This article outlines the creation of a research governance model aimed at reviewing and approving diabetes research projects with a focus on ethical standards and patient engagement. The model ensures that research projects align with the needs and priorities of the community. Diabetes Action Canada played a crucial role in the development of this governance framework by involving diverse stakeholders, including patients and researchers.