Participatory governance over research in an academic research network: the case of Diabetes Action Canada.
Willison DJ, Trowbridge J, Greiver M, Keshavjee K, Mumford D, Sullivan F.BMJ Open. 2019 Apr 20;9(4):e026828. doi: 10.1136/bmjopen-2018-026828.PMID: 31005936
This article outlines the creation of a research governance model aimed at reviewing and approving diabetes research projects with a focus on ethical standards and patient engagement. The model ensures that research projects align with the needs and priorities of the community. Diabetes Action Canada played a crucial role in the development of this governance framework by involving diverse stakeholders, including patients and researchers.
Featured in Article
Associated Programs
Digital Health
Using Data to Change Lives
Episode six features Kylie Peacock, a Diabetes Action Canada Patient Partner and Conrad Pow, a Senior Project Manager at Diabetes Action Canada discussing the National Diabetes Repository and how Diabetes Action Canada is using data to change lives.
Using data to improve health care
Episode four discusses how we can use data to improve health care. Guests Devin Cleary and Dr. Alanna Weisman discuss their research projects in this area – in particular how they are trying to improve outcomes for people with type 1 diabetes.
Diabetes Research Connect Launches
