New resource helps you better understand how health data is used

New resource helps you better understand how health data is used

New resource helps you better understand how health data is used

By kristalamb

Posted date: March 03, 2022

In February, myhealthdatapath.ca launched. With support and information from Diabetes Action Canada staff and researchers, this new resource aims to help people feel more confident about the ways in which their health data is shared to support research.

When it comes to health data, many people don’t understand how it is collected and the many ways in can be used (completely anonymously) to support better health outcomes for everyone.

My Health Data Path explains what data is, how it is generated, how it is anonymized, and some of the responsible uses for this data. It walks users through the journey or their data using easy-to-follow dialogue and patient-experience examples from our healthcare system.

“The goal is to show patients that there are meaningful connections in data,” says Conrad Pow, Diabetes Action Canada’s Senior Project Manager, who has been supporting this project. “We want to show how data can save lives.”

Visit myhealthdatapath.ca to learn more!

Featured in Article

Conrad Pow

View Profile

Related Webinars

Research Spotlight – National Diabetes Repository

This webinar highlights the National Diabetes Repository and its use as a valuable research tool for those interested in applying data science to their investigation in diabetes and its related complications.

Digital Health Solutions for Learning Health Systems

Using health data to better understand those living with diabetes and transform diabetes self-management.

Using Data to Change Lives

Episode six features Kylie Peacock, a Diabetes Action Canada Patient Partner and Conrad Pow, a Senior Project Manager at Diabetes Action Canada discussing the National Diabetes Repository and how Diabetes Action Canada is using data to change lives.

Using data to improve health care

Episode four discusses how we can use data to improve health care. Guests Devin Cleary and Dr. Alanna Weisman discuss their research projects in this area – in particular how they are trying to improve outcomes for people with type 1 diabetes.

National Diabetes Repository a Game Changer for Research

For diabetes researchers across Canada, data from patients is a critical tool in determining what projects will truly make a difference for people living with the disease. Understanding how many people have diabetes, what type of diabetes they live with, and the number and types of complications they are experiencing enables health service researchers to […]

LAUNCH OF THE DIABETES ACTION CANADA NATIONAL DIABETES REPOSITORY

Diabetes Action Canada, part of the Canadian Institutes of Health Research SPOR Program in Chronic Disease, is thrilled to announce the launch of the National Diabetes Repository. The National Diabetes Repository will be a major step forward in the monitoring and treatment of diabetes in Canada by enabling discovery through research in a secure and […]

National Diabetes Repository Facilitates Research on Drug Therapies for Type 2 Diabetes

By Krista Lamb New research led by Dr. Darren Lau at the University of Alberta uses data from Diabetes Action Canada’s National Diabetes Repository to look at whether people with type 2 diabetes should have access to newer drug therapies. The results of this study have been published in the Canadian Journal of Diabetes. “There […]