Author: Linxi Mytkolli

Mentorship and Internship Procedural Plan

Application & Approval Process

1. Information and application forms in both languages are provided on DAC website (follow-up with Cathy)
2. Training & Mentoring Coordinator receives and screens application forms and relevant documents
3. Training & Mentoring Coordinator adds applicants information to tracking database
4. Training & Mentoring Goal Group Leads evaluate (using evaluation criteria/chart) and recommend to the Co-Scientific Leads
5. Co-Scientific Leads submit the recommendations to the Steering Council (Quarterly meetings)
6. Diabetes Action Canada Central Admin updates Training & Mentoring Coordinator on the decision of the Steering Council

Next Steps

Follow-up by Training & Mentoring Coordinator:

• informs awarded candidates and provides additional information if needed
• updates Mentorship/Internship tracking database

Mentorship/Internship Report reminders

1. Training & Mentoring Coordinator monitors reminders for reports due
2. Training & Mentoring Coordinator sends an email to candidates for reports
3. Training & Mentoring Coordinator updates database

Award Selection Criteria

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DAC TRAINING AND MENTORING APPLICATION REVIEW CRITERIA – MENTORSHIP PROGAM 2017-18

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 Eligibility criteria:

• The applicant must be a member of the DAC Network.
• Early career investigators must be within three years of their university appointment and have a research program deemed to be of excellent scientific quality. An appointment start date must be included in the Candidate’s Research Program Section of the application.
• The applicant’s research and mentorship plan must relate to diabetes and its complications.
• The applicant must propose a mentorship plan that demonstrates capacity building in Patient-Oriented Research (e.g. establishment of new multidisciplinary and/or intersectoral collaborations within a network of patient-oriented research).
• The applicant must have the support of 1) an internal mentor from his/her research centre, and 2) an external mentor from a different research centre recognized by CIHR. At least one of the two mentors should be a member of the DAC Network. These mentors should be actively involved in the scientific leadership of the applicant, including student co-supervision, scientific collaboration, access to specialized platforms, etc.
• The applicant must submit a mentorship plan that has been discussed and approved by both internal and external mentors. A detailed description of the mentorship plan should be submitted for evaluation.
• Submit a CIHR CCV (with the Detailed Contributions section) of the applicant and mentors (internal and external) to assess scientific excellence. If the mentors are outside Canada, any CV containing information similar to the CIHR CCV will be accepted.
• A one-year budget plan of expenditures (limit $10,000), see below for eligible expenses.
• Successful candidates agree to provide a brief report each year for 3 years to demonstrate the leverage effect of the program (i.e. new collaborations, obtaining scholarships and/or external grants).

Note: Although not a criterion, applicants from rural or less connected communities will be given priority if proposed research program deemed appropriate.The Diabetes Action Canada Network supports equity in its Mentorship program and encourages applications from qualified individuals, women or men, including Aboriginal people, persons with disabilities and members of visible minorities.

Application Evaluation Process:

• Potential of the candidate: Quality of research training, scientific achievements, history of publication, funding and training of students;
• Research program: Clarity of the research question and scientific justification. Potential for the creation of new knowledge, originality of assumptions and research questions, new approach, or methodologies or new application of existing methodologies;
• Affiliation and expertise of the proposed mentors;
• Relevance and quality of the proposed intercentre mentorship plan: Immediate or potential impact of mentorship for the early career investigator’s laboratory/research and research within the DAC Network (e.g. establishment of new multidisciplinary and/or intersectoral collaborations within a network of patient-oriented research);
• Feasibility of the proposed budget: Relevance of the proposed use of funds.

 Scoring System – Scores out of 50

1. QUALITY OF THE APPLICANT (TRAINING, PUBLICATIONS, ETC.) – 20 points

Applicant’s score:      /20 points

2. QUALITY OF THE MENTORSHIP PLAN AND ALIGNMENT WITH DIABETES ACTION CANADA NETWORK OBJECTIVES – 20 points

Applicant’s score:      /20 points

3. QUALITY OF THE MENTORS – 10 points

Applicant’s score:      /10 points

Note: Considerations and pertinence related to POR (sex and gender, etc.) will be judged by the Patient Engagement Group in the next round.

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DAC TRAINING AND MENTORING APPLICATION REVIEW CRITERIA – INTERNSHIP PROGAM 2017-18

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 Eligibility criteria:

• The applicant must be a doctoral student, a postdoctoral fellow, a health professional research trainee, or a research professional and member of the DAC Network by the time of tenure of the grant (not necessarily before).
• The applicant’s supervisor must be a PI or Co-I of the DAC Network (e. before the application).
• Only one application per year per PI or Co-I in total may be submitted for this contest.
• Any applicant can only receive this support grant once.
• The applicant must provide a description of relevant training and integrate it into an intercentre collaborative project (incorporating at least two recognized research centers) involving at least one researcher of the DAC Network.
• Successful candidates agree to submit a scientific abstract for oral or poster presentation at the Annual Scientific Meeting of Diabetes Canada or other major national and international diabetes research conferences.
• Successful candidates agree to provide a brief progress report after the one-year funding and to respond to a short questionnaire yearly for another 2 years to document impact (i.e. new collaborations, obtaining scholarships and/or external grants).

Application Evaluation Criteria and Process:

 For DAC PIs, Co-Is and collaborators:

• Excellence in home and host laboratories: Description of performance, scientific contribution and expertise of the laboratories involved in the collaboration;
• Relevance and quality of the proposed intercentre training: Immediate or potential impact of mentoring for the original laboratory and research within the network, according to its objectives (ex. establishment of new multidisciplinary and/or intersectoral collaborations inside the DAC Network or at an international level, knowledge transfer, patient-oriented research, standardization of methods, establishment of a platform or common resources, etc.);
• Feasibility of the proposed budget: Relevance of the proposed use of funds.

For the student/intern/resident/professional:

• For doctoral students, residents and postdoctoral fellows:

1. Holding an excellent record of publication and participation/involvement in scientific activities.

• For research professionals:

1. Must be actively involved in activities related to the priorities of the DAC Network as in research platforms, multi-centric projects, provincial, national or international research networks.

• Demonstrate motivation to pursue a career in research areas related to diabetes and its complications.

Note: Although not a criterion, applicants from rural or less connected communities will be given priority if proposed research project is deemed appropriate.

The Diabetes Action Canada Network supports equity in its Internship program and encourages applications from qualified individuals, women or men, including Aboriginal people, persons with disabilities and members of visible minorities.

Scoring System – Scores out of 50

1. QUALITY OF THE APPLICANT (TRAINING, PUBLICATIONS, ETC.) – 20 points

Applicant’s score:      /20 points

2. QUALITY OF THE TRAINING PLAN AND ALIGNMENT WITH DIABETES ACTION CANADA NETWORK OBJECTIVES – 20 points

Applicant’s score:      /20 points

3. QUALITY OF THE MENTORS – 10 points

Applicant’s score:      /10 points

Note: Considerations and pertinence related to POR (sex and gender, etc.) will be judged by the Patient Engagement Group in the next round.

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Patient-Oriented Research (POR) Early Career Investigator Mentorship Award in Diabetes and its Complications 2018-2019

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Diabetes Action Canada is launching its 2018-2019 Intercentre Mentorship award for early career investigators interested in Patient-Oriented Research (POR) in diabetes and its complications. The goal of this award is to promote networking and optimal integration of early career investigators into the Diabetes Action Canada (DAC) Network and the Canadian diabetes research community. Up to two (2) annual mentorship awards will be awarded to early career investigators to work with an internal mentor and an external mentor. The internal mentor will be affiliated to the same research centre as the early career investigator. The external mentor will be affiliated with a different research centre from that of the early career investigator. At least one mentor will be a regular member of the DAC Network. Mentors who are not PI’s or Co-I’s of DAC must become DAC members before the allocation of funds.

Eligibility criteria and methods of evaluation are described below. Successful candidates will receive financial support of a maximum of $10,000 for a one-year period to support their intercentre scientific activities.

Application deadline

The deadline for submission of applications is June 29^th, 2018 for funding commencing no later than September1^st, 2018.

Applications submitted late, incomplete or which do not meet the eligibility criteria will not be evaluated. Proposed mentoring must be completed within the year of holding the award.

If not a DAC Network member at the time of application, successful early career investigator applicants must apply to become members of the DAC Network before allocation of award funds. Successful applicants must complete a final report at the end of their mentorship year (December 2019) and agree to subsequent annual reports for an additional two (2) years to document the impact of this mentorship experience.

Eligibility criteria for the proposed candidate:

• The applicant must be a member of the DAC Network.
• Early career investigators must be within three years of their university appointment and have a research program deemed to be of excellent scientific quality. An appointment start date must be included in the Candidate’s Research Program Section of the application.
• The applicant’s research and mentorship plan must relate to diabetes and its complications.
• The applicant must propose a mentorship plan that demonstrates capacity building in patient-oriented research (e.g. establishment of new multidisciplinary and/or intersectoral collaborations within a network of patient-oriented research).
• The applicant must have the support of 1) an internal mentor from his/her research centre, and 2) an external mentor from a different research centre recognized by CIHR. At least one of the two mentors should be a member of the DAC Network. These mentors should be actively involved in the scientific leadership of the applicant, including student co-supervision, scientific collaboration, access to specialized platforms, etc.
• The applicant must submit a mentorship plan that has been discussed and approved by both internal and external mentors. A detailed description of the mentorship plan should be submitted for evaluation.
• Submit a CIHR CCV (with the Detailed Contributions section) of the applicant and mentors (internal and external) to assess scientific excellence. If the mentors are outside Canada, any CV containing information similar to the CIHR CCV will be accepted.
• A one-year budget plan of expenditures (limit $10,000), see below for eligible expenses.
• Successful candidates agree to provide a brief report each year for 3 years to demonstrate the leverage effect of the program (i.e. new collaborations, obtaining scholarships and/or external grants).

Note: Although not a criterion, applicants from rural or less connected communities will be given priority if proposed research program deemed appropriate.

The Diabetes Action Canada Network supports equity in its Mentorship program and encourages applications from qualified individuals, women or men, including Aboriginal people, persons with disabilities and members of visible minorities

Eligible Expenses:

Any expenses related to mentorship support for the recipient according to CIHR research grant standards. This may include:

• transportation and accommodation costs for external mentor visits to the early career investigator’s research centre;
• transportation and accommodation costs for the early career investigator to the external mentor’s research centre;
• transportation, accommodation and registration at conferences/meetings for the early career investigator if at least one of the mentors is present at the same event and a meeting is on the agenda; or
• costs related to intercentre scientific collaborations (support of early career investigators directly involved in the intercentre collaboration, supplies, technical services, etc.).

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Patient-Oriented Research (POR) Intercentre Trainee Internship Award in Diabetes and its Complications 2018-2019

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Diabetes Action Canada is launching its 2018-2019 Intercentre Internship competition for graduate students, postdoctoral fellows, and research professionals interested in Patient-Oriented Research (POR) in diabetes and its complications. The goal of this award is to promote networking and optimal integration of trainees into the Diabetes Action Canada (DAC) Network and the Canadian diabetes research community. Up to two (2) annual internships will be awarded to trainees. The DAC Network invites researchers who are PI’s or Co-I’s of the DAC Network to propose collaborative projects in the areas of diabetes and its complications and for which a trainee will complete his training in another laboratory (in another research centre). This project will involve a DAC Network PI or Co-I with one or more collaborators of another Patient-Oriented Research centre. Every collaborator must be a member of the DAC Network (or another SPOR Network) and participate in its activities.

Eligibility criteria and methods of evaluation are described below. Successful candidates will receive financial support of a maximum of $10,000 for a one-year period to allow the establishment of the trainee-based collaboration between the collaborators.

Application deadline

The deadline for submission of applications is June 29^th, 2018 for funding commencing no later than September 1^st, 2018.

Applications submitted late, incomplete or which do not meet the eligibility criteria will not be evaluated. Funded projects must be completed within the year of holding the award.

If not a DAC Network trainee member at the time of application, successful applicants must apply to become members of the DAC Network in order to receive the grant. Recipients must complete a final report at the end of their year of funding and agree to respond to subsequent annual short questionnaires for an additional two (2) years to document the impact of this internship experience.

Eligibility criteria:

1. The applicant must be a doctoral student, a postdoctoral fellow, a health professional research trainee, or a research professional and member of the DAC Network by the time of tenure of the grant (not necessarily before).
2. The applicant’s supervisor must be a PI or Co-I of the DAC Network (e. before the application).
3. Only one application per year per PI or Co-I in total may be submitted for this contest
4. Any applicant can only receive this support grant once.
5. The applicant must provide a description of relevant training and integrate it into an intercentre collaborative project (incorporating at least two recognized research centres) involving at least one researcher of the DAC Network.
6. Successful candidates agree to submit a scientific abstract for oral or poster presentation at the Annual Scientific Meeting of Diabetes Canada or other major national and international diabetes research conferences.
7. Successful candidates agree to provide a brief progress report after the one-year funding and to respond to a short questionnaire yearly for another 2 years to document impact (i.e. new collaborations, obtaining scholarships and/or external grants).

Eligible Expenses:

Any expenses related to internship support for the recipient according to CIHR research grant standards. This may include:

• Transport, accommodation and living expenses (if necessary depending on the distance) for the trainee(s) in the collaboration laboratory;
• Shipping costs between the main laboratory and the collaboration laboratory(ies) in connection with the trainee’s stay;
• Purchase of supplies necessary for the trainee’s setup in the collaboration laboratory(ies) (the purchases can be made in the host laboratory or in the main laboratory).

 Ineligible Expenses:

• Transport, accommodation and living expenses for the trainee in his/her main laboratory; Salary for trainees or other researchers.

Application Submission Process:

• Application form completed by the trainee or research personnel;
• A CIHR CCV (with the Detailed Contributions section) of the trainee or research personnel.

All documents must be submitted (in PDF format) to the DAC Training and Mentoring Coordinator, Michelle Murray, Michelle.Murray@umoncton.ca.

Application Evaluation Criteria and Process:

All applications will be assessed according to the eligibility criteria of the competition and the following criteria. Successful candidates will be notified by July 13^th, 2018.

For DAC PI’s, Co-I’s and collaborators:

• Excellence in home and host laboratories: Description of performance, scientific contribution and expertise of the laboratories involved in the collaboration;
• Relevance and quality of the proposed intercentre training: Immediate or potential impact of mentoring for the original laboratory and research within the network, according to its objectives (ex. establishment of new multidisciplinary and/or intersectoral collaborations inside the DAC Network or at an international level, knowledge transfer, patient-oriented research, standardization of methods, establishment of a platform or common resources, etc.);
• Feasibility of the proposed budget: Relevance of the proposed use of funds.

For the student/intern/resident/professional:

• For doctoral students, residents and postdoctoral fellows:
  • Holding an excellent record of publication and participation/involvement in scientific activities.
• For research professionals:
  • Must be actively involved in activities related to the priorities of the DAC Network as in research platforms, multi-centric projects, provincial, national or international research networks.
• Demonstrate motivation to pursue a career in research areas related to diabetes and its complications.

Note: Although not a criterion, applicants from rural or less connected communities will be given priority if proposed research project is deemed appropriate.

The Diabetes Action Canada Network supports equity in its Internship program and encourages applications from qualified individuals, women or men, including Aboriginal people, persons with disabilities and members of visible minorities.

Any request for additional information can be forwarded to the DAC Training and Mentoring Coordinator, Michelle Murray, Michelle.Murray@umoncton.ca.

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CONTENTS 

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1. Terms of Reference for the Steering Council

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• Ensure that the Vision and Mission of the SPOR Network are fulfilled through a strategic, accountable, committed leadership and management functions

• Through the skill-based and partnership governance structure, create the highest quality oversight, communication, support and guidance for the conduct of the patient-oriented research goals using best (corporate) governance principles;

• Develop appropriate agreement and memorandum documents articulating terms suitable for membership in the SPOR Network including specific description of participation and co-investment of resource (time, expertise, infrastructure and revenues);

• Enable strict financial oversight using standard accounting and auditing measures;

• Promote strategic partnership relationships with inaugural (core) and new members (academic, public and private) of the SPOR Network with sensitivity to balancing gender, age, language (French, English);

• Incorporate local academic and clinical nodes of the Network in strategic project development, implementation and evaluation;

• Monitor governance performance including excellence and sustainability of the leadership, management and engagement of the participating members;

• Manage conflict of interest through appropriate processes including necessary agreements establish for all aspects of governance and research partnerships.

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2. Steering Council Executive

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• To review and approve the agendas for the Steering Council Meetings;
• To review strategic initiatives and partnership proposals brought forward by the Strategic Partnerships and Innovation Standing Committee;
• To review nomination of new members or re-appointment of members to the Steering Council and its Standing Committees, as proposed by the Nomination/Governance Standing Committee;
• To advise Co-Scientific leads and Executive Director about issues arising between meetings of the Steering Council that require executive decision;
• To review the draft Annual Financial Report to CIHR and Network Partners, as submitted by management with oversight by the Finance/Audit Standing Committee;
• To work closely with the Co-Scientific Leads and Executive Director on all matters related to fulfilling the objectives of Diabetes Action Canada.

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3. Standing Committees of the Steering Council

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Members of the Steering Council along with other relevant leaders (e.g. Network Directors and collaborating experts) will serve on the following three Standing Committees:

1. Strategic Partnerships and Innovation Standing Committee
2. Nomination/Governance Standing Committee
3. Finance/Audit Standing Committee

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4. Terms of Reference for the Standing Committees

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a) Strategic Partnerships and Innovation Standing Committee

1. To develop and oversee the implementation of all the internal and external strategic partnerships for the collaborative research, KT and education projects that are undertaken by the Network Goal Groups;

2. Responsible for advising about the ongoing strategic planning and evaluation of these activities;

3. To receive the annual reports of each of the Goal Groups and the Scientific Advisory Panel and to advise the Steering Council;

4. To advise about the strategic plans for support and sustainability of the Network.

b) Nomination/Governance Standing Committee

1. To recruit and nominate members of the Steering Council including the Executive. A slate of new members will be brought forward to the Steering Council annually as necessary in their Fall Face-to-Face Meeting;

2. The Committee Chair along with the Chair of the Steering Council and Co-Leads will be responsible for orientation of new members of the Council;

3. Responsible for organizing and implementing the evaluation of the performance of the Steering Council as well as the annual performance of the Co-Leads (Academic);

4. To assist in recruitment of Members of the Standing Committees of the Steering Council

c) Finance/Audit Standing Committee

1. To develop the annual revenue/expense budget of the SPOR Network for approval by the Steering Council;

2. To report the quarterly actual against budget to the Steering Council;

4. To oversee the annual formal financial audit for the Network’s annual report.
5. To recommend an auditor for the SPOR Network

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5. Patient-Oriented Research (POR) Program Committee

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• Coordinates and monitors all research, KT and education translation activities within the Network with advice from the Patient Circles
• Ensure the work plans are executed with adherence to timelines
• Evaluative reporting on outputs and outcomes
• Advises the Steering Council about new Network members
• Provides guidance and feedback on strategic directions of the Network, including changes to implementation of projects or development of new opportunities
• Advises Goal Groups about new opportunities for acquiring new revenues and partners
• Receives annual reports of all of the projects and evaluates progress toward target deliverables and milestones
• Assists in preparation of the annual budget with the Executive Director and DAC Administrative team
• Assists the management team in ensuring timely reporting of the revenues and expenses and assessing financial targets according to the planned budget throughout the year
• Works closely with institutional fund-raising leads to leverage new resources to meet and exceed the target for matched funding

Members:

The POR Program Committee represents the core Principal Applicants and Principal Knowledge Users of Diabetes Action Canada SPOR Network and invited subject matter experts who are responsible for the implementation of all of the programs and projects constituting this research, knowledge translation and training alliance.   This meeting is held monthly and is meant to ensure continual communication, relationship-building, collaboration and synergy among our key leaders.  The POR Program Committee is an integral part of the Diabetes Action Canada governance structure and provides strategic, critical and innovative thinking in the implementation of Diabetes Action Canada programs and projects.

To see more on this committee click here
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6. Patient Circles

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Diabetes Action Canada Patient Circles: Overview and Terms of Reference

Goals of the Patient Circles

The goals of the Patient Circles are:

1. to foster patient-oriented research relevant to diabetes; and
2. to contribute to better quality research on diabetes and its related complications.

To accomplish these goals, the Patient Circles aim to:

• Bring together diverse groups of people who bring a variety of backgrounds, expertise, ideas, types of diabetes, and personalities
• Foster understanding across these groups
• Create a community of people living with diabetes and their caregivers (hence referred to as Patient partners) who will be involved fully as partners of the Network
• Build capacity for patient engagement in research on diabetes and its related complications in collaboration with the Training and Mentoring Group of the Network
• Ensure that Patient partners are involved at every level (governance, tactical and operational) of the Network and in all phases of the research process (planning of studies, conducting the studies, disseminating the studies’ results, and implementing results of studies)
• Foster communication among and between researchers and those whose lives are most affected by research findings, namely, patients and their family members.

We will regularly report on our progress on these points.

Responsibilities of Members of Patient Circles

• Articulate what matters to patients, families, and communities to inform what diabetes-related research should be done and how it should be done
• Bring knowledge and ways of knowing from other communities to diabetes research
• Support a strong patient voice in working groups, committees and research teams
• Identify and establish local connections to build Diabetes Action Canada’s network of Patient partners
• Share news about Diabetes Action Canada with their communities
• Help disseminate research findings within communities of people affected by diabetes (including, if desired, helping to organize meetings where researchers can bring research findings to communities or health professionals such as certified diabetes educators or dietitians can present best practices)
• Solicit feedback from members of those communities of people affected by diabetes

The Patient Circles adhere to the Guiding Principles set out by the Canadian Institutes of Health Research (CIHR) in the Patient Engagement Framework. These are:

• Inclusiveness: Patient engagement fully integrates a diversity of patient perspectives
• Support: Adequate support and flexibility are provided to patient participation to ensure that they can contribute fully to discussions and negotiations
• Mutual Respect: Researchers, practitioners, and patients acknowledge and value each other’s expertise and experiential knowledge
• Co-Build: Patients, researchers, and practitioners work together from the beginning to identify problems and gaps, set priorities and work together to produce and implement solutions.

This is a living document, as the Patient Circles become more established and as Diabetes Action Canada progresses, changes may be required.

Leadership & Membership of the Patient Circles

To begin, there will be three distinct Patient Circles composed of diverse groups of people who live in Canada and who have diabetes themselves (type 1, type 2 or other types) or who are primary caregivers for persons with diabetes.  Each Circle (Collective Patient Circle, Indigenous Patient Circle, Francophone Patient Circle) will include about 12-16 members. The Collective Patient Circle will include at least two liaisons from each of the other Circles. Liaisons will help facilitate smooth communication between Circles and to help ensure that the Collective Patient Circle appropriately incorporates the voices of members of specific populations. Over time, the structures of Circles may change. For example, we initially envisioned having a separate Circle of people who immigrated to Canada as adults, but members of this Circle preferred to be integrated into either the Collective or Francophone Circle, depending on preferred language. We may also add more Circles; for example, we envision possibly adding a French-speaking Indigenous Patient Circle, a Youth Circle, and perhaps others. The Circles will be structured as follows:

Collective Patient Circle

• 12-16 members, at least 4 who are also members of the other 2 Patient Circles
• Persons ensuring functioning of Circle: Holly Witteman, Olivia Drescher
• Additional support: Jon McGavock, Joyce Dogba, Marie-Claude Tremblay
• Anticipated frequency of meetings: 8 meetings per year, 90-minute teleconferences
• Language of meetings: English

Francophone Patient Circle

• 12-16 members, including at least 2 who are also members of the Collective Patient Circle
• Persons ensuring functioning of Circle: Joyce Dogba, Olivia Drescher
• Additional support: Jon McGavock, Holly Witteman, Marie-Claude Tremblay
• Anticipated frequency of meetings: 4 meetings per year
• Language of meetings: French

Indigenous Patient Circle

• 12-16 members, including at least 2 who are also members of the Collective Patient Circle
• Ideally, this Circle will include 2-3 elders
• Persons ensuring functioning of Circle: Alex McComber, Jon McGavock, Marie-Claude Tremblay, Pusha Sadi
• Additional support: Holly Witteman, Joyce Dogba, Olivia Drescher
• Anticipated frequency of meetings: 4 meetings per year
• Language of meetings: Mostly English; Indigenous languages when possible

 Patient Circles’ representativeness

Each Patient Circle will aim to have an approximately equal representation of men and women.

Taken together, the Patient Circles will also aim to represent:

• People of different ages, racial, ethnic, and socioeconomic backgrounds.
• People whose lives are affected by type 1, type 2, and other types of diabetes.
• People from different regions of Canada.
• People who are Indigenous from nations located within Canada, settlers born in Canada or who immigrated as children, and people who immigrated to Canada as adults

SPOR Diabetes Network Patient Engagement and Indigenous Health Team Roles

Diabetes Action Canada’s Patient Engagement and Indigenous Health teams will support and coordinate activities of the Patient Circles. They will:

• help plan the meetings;
• organize teleconferences;
• distribute materials and minutes to Patient partners, specifically:
  • send meeting documents by email as soon as they are available, in both Microsoft Word and pdf formats, and
  • aim to send a final package of meeting documents one week in advance of the meeting, noting documents that are duplicates of those previously sent; and
• Provide administrative and other aid as required by members of the Patient Circle.

Communication guidelines

Our goal in all communication is to understand and be understood. To that end, we will:

• avoid jargon and acronyms as much as possible,
• explain specialized terms whenever it is not possible to avoid using them, and
• Avoid tables and figures in documents to allow screen readers to more easily interpret the document.

Role of the Patient Circles

The Patient Circles are advisory and guidance bodies. They advise and guide Diabetes Action Canada on multiple levels to ensure that the network is responsive to what matters to patients.  The Patient Circles advise the Steering Committee.  The Steering Committee holds the ultimate governance responsibility for Diabetes Action Canada and has 50% patient or patient representative membership (6 members). Some of these may be members of the Patient Circles.

The Patient Circles also advise on research projects in a number of different ways. Advising on research projects includes discussing research projects at Patient Circle meetings to provide guidance to researchers to help make the research more relevant to patients. Members of Patient Circles as well as other patient members of DAC may also serve as Patient partners on research projects, bringing their expertise from their lived experience with diabetes to the research. Patients can provide expertise in many ways, including their experience of living with diabetes and, if applicable, complications; experience with the health system (care delivery), experience with specific treatments (drugs, surgeries, devices), and community needs.

Levels of Involvement & Time Commitments

All levels of participation are encouraged and welcomed in the Patient Circles. It is understood that the level of involvement and the time commitment possible will vary between members, given the diversity among the Patient Circles members’ jobs, personal commitments, wellness and illness, and other supports.  Depending on the level of involvement, the anticipated workload for most Patient partners will be 0.5-2 hours per week.

Members have the option to scale their commitment at any time: When a Patient partner decides to change his/ her level of commitment, he/ she may inform the lead(s) of the research team(s) or Patient Circle(s) and the Patient Engagement Coordinator. Sometimes during times of difficulty in a person’s life, it may be necessary for him/her to step away from his/her role on the Circle. In such cases, the Circle may “keep the person’s seat warm” so that they may return to the Circle when they are able. The Patient Circles will make sure that there is a succession plan for members for when they leave the Circle.

Learning from each other: When new Patient Circle members come on board, they will be offered a brief orientation and mentorship from another member. All Patient Circle members are strongly encouraged to participate in a free training session on Patient-Oriented Research. When a Patient Circle member leaves, the Patient Engagement team will organize a final meeting in which that member may provide any parting thoughts and advice they have to improve our work in future.

Meeting frequency:  The Collective Patient Circle will meet approximately eight (8) times per year, for 90 minutes by teleconference, online technology or other method selected by the group.  Other Patient Circles will meet approximately four (4) times per year, for 60-90 minutes by teleconference, online technology, or other method selected by the group. These meetings will take place during the time of day or evening most convenient for all participants, alternating if necessary to balance needs. Full-day, in-person meetings will take place at least once per year, budget permitting, ideally in different locations. Meeting frequency and method may be adapted according to the views of Circle members. For example, a Circle may choose to have less frequent, in-person meetings.

Term length: Patient Circle members will initially be encouraged to sit for a term of 1 year, starting from the first full meeting of Diabetes Action Canada Patient Circles, May 2017.  After the first year, we hope to maintain at least two thirds of Patient Circle members as active Circle members, with new members joining to help provide new perspectives and allow exiting members to pursue other activities, including possibly other roles within Diabetes Action Canada. Ultimately, we aim to have Patient Circle members take up 3-year terms, with one third of the members finishing their term each year. In this way, participation renewal will be staggered to ensure that there are experienced members, as well as new members on the Patient Circle at all times. Existing members will help informally mentor new members. As the Patient Circles take shape in the first two years, the Patient Engagement team will help to identify which members wish to continue their terms or step back, and will structure ongoing terms accordingly to balance the Circles.

Chairs: Chairship of meetings will be determined by each Circle. It is suggested that chair responsibilities be assumed by those who wish to assume them, sharing responsibilities as needed, with rotating chairs if desired. Meeting chairs will have support from the Patient Engagement team.

Decisions and Quorum:  As primarily advisory bodies, Patient Circles will not need to take formal votes frequently. When decisions are required, the Circles will aim for consensus, with an ethic of collaboration, cooperation, and trust, aiming always for respectful debate in which we all seek to understand and be understood. If consensus cannot be reached, those who disagree with the group’s decision may include their concerns in the final report to ensure that these are documented. Because the liaisons represent specific groups who may have particular needs, when decisions are made on the Collective Patient Circle that require a vote, liaisons will be invited to bring issues and/or proposed decisions to their Circles for further discussion prior to the Collective Patient Circle’s vote. The quorum of the Collective Patient Circle (number of members whose presence is necessary to make a binding decision) will be half of its members plus 1, with at least 1 liaison from each other Circle present.

Communication:  The Patient Circles will explore options (i.e., methods and frequency) for communication between meetings of the Patient Circles. This can take the form of social media, e-mails, newsletters etc. as deemed most appropriate and effective by the members of the Patient Circles.

 Working groups and committees: As the initiative evolves, a number of working groups or standing committees may be established which will provide more focused work. Members of the Patient Circles will be encouraged to join as many working groups as time and interest allows.

 Compensation: In recognition for their time spent and valuable expertise, members of the Patient Circles will be offered compensation in accordance with the Diabetes Action Canada Compensation Policy. Compensation will be provided for selected activities, including both meetings and preparation time for meetings.  Travel and accommodation costs will be reimbursed. Patient partners will have the option to decline to be compensated.

Opportunity for community at large to provide input to the Circles:  Members of the Patient Circles will be ambassadors and champions by liaising with other community organizations and groups. They will bring back any relevant input to the Patient Circles. Members of the Patient Circles are welcome to bring in any idea and/or suggestion from the community for discussion within the Circles.

References

This document draws from a number of other documents, including the Canadian Institutes of Health Research (CIHR) Patient Engagement Framework and the Patient Council Terms of Reference developed by the Can-SOLVE CKD SPOR Network and generously shared with other SPOR Networks.

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7. Project Coordinators Committee

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The Project Coordinators Committee provides a valuable source of information to the network. They are often the implementers of research and main connection among Goal Groups. They also report on the status of the Research programs and Research enabling programs including activities, progress, deliverables, events, etc.

The Committee comprises the Project Coordinators of the Goal Groups and the staff of DAC Administration.  The members of the Committee are:

Chair:  Tracy McQuire, Manager/Research Operations & Project Coordinator, Clinical Trials

Members:

• Olivera Sutakovic, Project Coordinator, Diabetic Retinopathy
• Helena Medeiros, Project Coordinator, Health Informatics
• Pusha Sadi, Project Coordinator, Indigenous Peoples’ Health
• Olivia Drescher, Project Coordinator, Patient Engagement
• Michelle Murray, Project Coordinator, Training & Mentoring
• Annie Barbeau Project Coordinator, Knowledge Translation
• Conrad Pow, Project Coordinator, Digital Health to improve Diabetes Care
• Amy Clare, Project Coordinator, Sex and Gender
• Abdelrahman Zamzam, Project Coordinator, Foot Care and prevention of lower extremity Amputation.
• Mildred Lim, Business Officer
• Jessica Antwi, Administrative Assistant

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8. Health Informatics Working Committee

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The Health Informatics Working Committee is an ad-hoc committee established to develop a health technology strategy across the research programs of Diabetes Action Canada.

Members of the Health Informatics Working Committee:

Chair: Catharine Whiteside

Members:      

Michael Brent, Joe Cafazzo, Jean-Pierre Després, Neil Drummond, Jean-Francois Ethier, Shivani Goyal, Michelle Greiver, France Légaré, Gary Lewis, Tracy McQuire, Bruce Perkins, Conrad Pow,  Matthew Tenant, David Wong

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