By kristalamb |
On this latest episode of asPERusual – a podcast for practical patient engagement, host Anna Maria Chudyk interviewed our very own Tracy McQuire and Linxi Mytkolli to learn about the different ways in which our Strategy for Patient-Oriented Research network is committed to improving the lives of persons living with diabetes.
Regardless of whether diabetes is your research focus, this episode is of interest to anyone conducting interdisciplinary or knowledge-user-driven research. Tune in or read the interactive transcript to learn all about:
- How Diabetes Action Canada | CIHR SPOR Network brings together diverse groups of knowledge users and guides them in finding a common language and space for them to work together to make better research, better policy, and better programs to better the lives of people living with diabetes;
- Our innovative approach to evaluation (at the network and individual level);
- The depth and breadth of involvement and engagement opportunities within the network, as well as their benefits; and
- Key takeaways including the applicability of patient engagement across the spectrum of research and the need to democratize how we do patient engagement.
Visit the podcast’s website, or download wherever you access your other podcasts.
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Supporting the Mental Health Needs of People with Type 1 Diabetes
Diabetes is a 24-hour condition with no vacations or days off. Those who live with it understand that diabetes distress – the term for mental health challenges specific to diabetes – is very real and can be very challenging to manage. It can also have a big impact on other aspects of diabetes care – like this A1Cs doctors are always checking.
This episode’s guests will give listeners lots to think about when it comes to diabetes and mental health – and how Diabetes Action Canada is at the forefront of new programs aimed at improving mental health in everyone with diabetes.
Host Krista Lamb with talk to guests Dr. Carly Whitmore, an Assistant Professor in the Faculty of Health Sciences at McMaster University, and Linxi Mytkolli, Diabetes Action Canada’s Lead of Patient Engagement and Knowledge Mobilization and a person living with diabetes.
Patient Partnership in Clinical Trials
Clinical trials are the way we test new drugs or therapies on people, and they’re incredibly important to moving diabetes research forward. However, they can be challenging and complicated to develop and fund.
That’s where the new Diabetes Clinical Trials Network in Canada comes in.
This episode’s guests are Dr. Hertzel Gerstein, who is leading this new Network, and Diabetes Action Canada’s Executive Director, Tracy McQuire. They explain why the organizations have partnered with a goal of improving the pathway to moving the best clinical trials in diabetes forward faster.
Reshaping How we Research Type 1 Diabetes
On this episode of Actions on Diabetes, host Krista Lamb will be chatting with two guests who are looking at ways to improve the coordination of care for people living with type 1 diabetes. The Reshape T1D project tries to understand how people interact with the health care system by involving those living with T1D and their clinicians in designing the research process.
Our guests are Jamie Boisvenue, a PhD student at the Alberta Diabetes Institute and the University of Alberta, and Patient Partner Kathleen Gibson. They are hoping to highlight have lived experience to help clinicians provide better patient-forward care.
